” content_phone=”<\/p>\n
Plateforme pour les professionnels de sant\u00e9<\/span><\/a><\/p>\n ” content_last_edited=”on|phone” admin_label=”Text” _builder_version=”4.27.2″ _module_preset=”default” text_font=”|700|||||||” text_text_color=”#ea5504″ text_orientation=”center” custom_margin=”||||false|false” custom_margin_tablet=”” custom_margin_phone=”||||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||||false|false” link_option_url_new_window=”on” text_text_color_tablet=”” text_text_color_phone=”” text_text_color_last_edited=”on|phone” global_colors_info=”{}”]<\/p>\n Hub pour les professionnels de sant\u00e9<\/span><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ admin_label=”Column” _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_3″ admin_label=”Column” _builder_version=”4.24.0″ _module_preset=”default” background_color_phone=”RGBA(255,255,255,0)” background_last_edited=”on|phone” background_enable_color_phone=”on” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”|700|||||||” text_text_color=”#FFFFFF” background_color=”#ea5504″ width=”100%” module_alignment=”center” custom_margin=”||||false|false” custom_margin_tablet=”” custom_margin_phone=”||||false|false” custom_margin_last_edited=”on|desktop” custom_padding=”10px||||false|false” link_option_url=”https:\/\/kyowakirininternational.com\/global-reporting\/” link_option_url_new_window=”on” border_color_all=”#FFFFFF” global_colors_info=”{}”]<\/p>\n Signaler un \u00e9v\u00e9nement ind\u00e9sirable [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” z_index=”500″ width=”100%” max_width=”100%” min_height=”100px” height=”100px” overflow-x=”visible” overflow-y=”visible” custom_margin=”||||false|false” custom_padding=”|||25px|false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ 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menu_font=”|600|||||||” menu_text_color=”#5d6164″ menu_font_size=”17px” background_color=”RGBA(255,255,255,0)” custom_css_free_form=”.et_pb_menu__icon.et_pb_menu__search-button {||padding: 2% 2% 2% 1%;||||}” global_colors_info=”{}”][\/et_pb_menu][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” width=”90%” max_width=”100%” custom_margin=”-25px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][lwp_divi_breadcrumbs home_text=”Page d’accueil” font_icon=”5||divi||400″ link_color=”#5d6164″ separator_color=”#e95505″ current_text_color=”#e95505″ _builder_version=”4.27.2″ _module_preset=”default” module_text_align=”left” background_color=”RGBA(255,255,255,0)” text_orientation=”left” animation_style=”fade” global_module=”1047″ global_colors_info=”{}”][\/lwp_divi_breadcrumbs][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.24.0″ _module_preset=”default” background_color=”#5d6164″ height=”50px” height_tablet=”100px” height_phone=”140px” height_last_edited=”on|phone” custom_margin=”||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.25.1″ _module_preset=”default” custom_margin=”-40px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_menu menu_id=”40″ menu_style=”centered” active_link_color=”#ea5504″ dropdown_menu_line_color=”#ea5504″ dropdown_menu_active_link_color=”#ea5504″ mobile_menu_bg_color=”#b4c0c1″ mobile_menu_text_color=”#000000″ menu_icon_color=”#ea5504″ _builder_version=”4.25.1″ _module_preset=”default” menu_text_color=”#FFFFFF” menu_font_size=”15px” background_color=”RGBA(255,255,255,0)” global_colors_info=”{}”][\/et_pb_menu][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ next_background_color=”#FFFFFF” _builder_version=”4.27.2″ _module_preset=”default” background_color=”#e5e5e5″ background_image=”https:\/\/kyowakirininternational.com\/fr-fr\/wp-content\/uploads\/sites\/13\/2024\/03\/SeniorLadyGlassesLaughing-1.png” bottom_divider_style=”slant2″ bottom_divider_height=”42px” global_colors_info=”{}”][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” header_font=”|700|||||||” header_text_color=”#FFFFFF” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.24.0″ _module_preset=”default” background_color=”RGBA(255,255,255,0)” overflow-x=”visible” overflow-y=”visible” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_text_color=”#FFFFFF” header_2_font=”|700|||||||” header_2_text_color=”#FFFFFF” background_color=”rgba(0,0,0,0.75)” custom_padding=”10px|10px|10px|10px|false|false” animation_style=”fade” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”]<\/p>\n Nous soutenons une action d’accompagnement \u00e9labor\u00e9e et mise en oeuvre par des associations et des professionnels de sant\u00e9 pour les patients atteints d’hypophosphat\u00e9mie li\u00e9e \u00e0 L’X (XLH) et ost\u00e9omalacie oncog\u00e9nique (TIO).<\/p>\n Le but? Apporter une assistance, un soutien aux patients dans la prise en charge de leur hypophosphat\u00e9mie li\u00e9e \u00e0 l’X ou ost\u00e9omalacie oncog\u00e9nique et les accompagner dans la vie quotidienne<\/p>\n Comment? Le programme propose un suivi t\u00e9l\u00e9phonique pendant 12 mois visant \u00e0 assurer une coordination entre tous les acteurs du parcours de soin pour une meilleure prise en charge des patients, ainsi qu’un acc\u00e8s \u00e0 des conseils privil\u00e9gi\u00e9s de la part d’une \u00e9quipe infirmi\u00e8re, form\u00e9e \u00e0 r\u00e9pondre \u00e0 toutes les questions relative \u00e0 la maladie et aux traitements<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_testimonial author=”Stacey Minton” job_title=”Vice-pr\u00e9sidente senior (SVP), Responsable des affaires g\u00e9n\u00e9rales” company_name=”Kyowa Kirin International (KKI)” portrait_url=”https:\/\/kyowakirininternational.com\/fr-fr\/wp-content\/uploads\/sites\/13\/2024\/03\/Stacey-Minton-1.png” quote_icon_color=”#FFFFFF” quote_icon_background_color=”#ea5504″ _builder_version=”4.27.2″ _module_preset=”default” body_text_color=”#FFFFFF” author_text_color=”#FFFFFF” position_text_color=”#FFFFFF” company_text_color=”#FFFFFF” background_color=”RGBA(255,255,255,0)” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(234,82,0,0.75) 0%|rgba(234,82,0,0.66) 100%” animation_style=”slide” animation_delay=”200ms” border_color_all=”RGBA(255,255,255,0)” global_colors_info=”{}”]<\/p>\n En tant que cr\u00e9ateur de liens et de communaut\u00e9s, nous collaborons \u00e9troitement avec nos parties prenantes pour identifier et accompagner les patients d\u00e8s les premi\u00e8res \u00e9tapes de leur parcours.<\/p>\n Nous les aidons ainsi \u00e0 acc\u00e9der aux soins, aux traitements et au soutien dont ils ont besoin.<\/p>\n [\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.2″ _module_preset=”default” background_color=”rgba(0,0,0,0.75)” animation_style=”fade” animation_delay=”200ms” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_text_color=”#FFFFFF” header_2_font=”|700|||||||” header_2_text_color=”#FFFFFF” custom_padding=”10px|10px|10px|10px|false|false” global_colors_info=”{}”]<\/p>\n Nous soutenons la r\u00e9alisation d’articles et des newsletters publi\u00e9es sur la plateforme en ligne pour les personnes qui vivent avec un XLH et leurs proches d\u00e9velopp\u00e9e par Carenity.<\/p>\n A l’aide de cette plateforme les patients et leurs proches peuvent \u00e9changer:<\/p>\n \u2022 Sur le quotidien avec la maladie<\/p>\n \u2022 Sur les sympt\u00f4mes de la maladie<\/p>\n \u2022 Des astuces et conseils pour bien vivre avec la maladie<\/p>\n \u2022 Etc…<\/p>\n Lien vers Carenity<\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ next_background_color=”#ea5504″ _builder_version=”4.24.2″ _module_preset=”default” background_color=”#FFFFFF” bottom_divider_style=”curve” bottom_divider_height=”51px” global_colors_info=”{}”][et_pb_row _builder_version=”4.24.2″ _module_preset=”default” animation_style=”slide” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” header_font=”|700|||||||” header_text_color=”#ea5504″ global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n En mai\u202f2024, <\/span>Kyowa<\/span> Kirin a annonc\u00e9 avec fiert\u00e9 la publication de \u00ab\u202fTime to <\/span>Act<\/span>\u202f: consensus mondial ax\u00e9 sur le patient pour l’am\u00e9lioration des soins du CTCL\u202f\u00bb, qui a \u00e9t\u00e9 d\u00e9velopp\u00e9 en collaboration avec des groupes de d\u00e9fense des patients.<\/span><\/span>\u00a0<\/span><\/p>\n Cette d\u00e9claration de consensus est le r\u00e9sultat inaugural du CTCL Global Care Collaborative, un nouveau groupe \u00e9tabli et financ\u00e9 par <\/span>Kyowa<\/span> Kirin. Ses membres sont des groupes de d\u00e9fense des patients du monde entier et de <\/span>Kyowa<\/span> Kirin.<\/span><\/span><\/p>\n Le groupe Collaborative est uni par une mission commune visant \u00e0 r\u00e9duire le temps n\u00e9cessaire \u00e0 un diagnostic pr\u00e9cis et \u00e0 am\u00e9liorer la qualit\u00e9 des soins et du soutien pour les personnes vivant avec le CTCL. Pour mener \u00e0 bien cette mission, Time to <\/span>Act<\/span> demande aux autorit\u00e9s sanitaires, aux h\u00f4pitaux et aux m\u00e9decins d’entreprendre 12\u202factions sp\u00e9cifiques pour aider \u00e0 am\u00e9liorer la sensibilisation, les tests, le diagnostic, les soins et le soutien aux personnes touch\u00e9es par le CTCL.<\/span><\/span>\u00a0<\/span><\/p>\n Merci de prendre quelques minutes pour lire la d\u00e9claration de consensus compl\u00e8te, disponible en fran\u00e7ais<\/a>. <\/span><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ next_background_color=”#5d6164″ _builder_version=”4.24.2″ _module_preset=”default” background_color=”#ea5504″ bottom_divider_style=”mountains2″ bottom_divider_height=”34px” global_colors_info=”{}”][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” header_font=”|700|||||||” header_text_color=”#FFFFFF” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_text_color=”#FFFFFF” global_colors_info=”{}”]<\/p>\n Les \u00e9quipes multidisciplinaires (MDT) sont essentielles pour soutenir les personnes souffrant de maladies rares tout au long de leur parcours de diagnostic et de soins. Elles facilitent l’acc\u00e8s aux soins et permettent une prestation plus efficace des soins sp\u00e9cialis\u00e9s.\u00a0<\/span><\/span><\/p>\n L\u2019objectif de <\/span>Kyowa<\/span> Kirin est d\u2019identifier les meilleures pratiques pour les MDT dans le domaine de l’XLH et du CTCL \u00e0 travers l\u2019Europe. Nous pouvons ainsi nous associer aux communaut\u00e9s XLH et CTCL pour soutenir le partage des meilleures <\/span>pratiques<\/span>.<\/span><\/span><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Section” _builder_version=”4.24.2″ _module_preset=”default” background_color=”#5d6164″ custom_margin=”||||false|false” top_divider_style=”curve” top_divider_color=”#FFFFFF” top_divider_height=”71px” top_divider_repeat=”1x” top_divider_flip=”vertical” top_divider_style_tablet=”” top_divider_style_phone=”none” top_divider_style_last_edited=”on|desktop” global_module=”3455″ saved_tabs=”all” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.2″ _module_preset=”default” width=”70%” max_width=”100%” custom_margin=”-50px||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/kyowakirininternational.com\/fr-fr\/wp-content\/uploads\/sites\/13\/2024\/01\/KKI-Logo-White-PhotoRoom-1-300×86.png” title_text=”KKI Logo White-PhotoRoom” align=”center” _builder_version=”4.24.0″ _module_preset=”default” width=”200px” width_tablet=”15%” width_phone=”50%” width_last_edited=”on|phone” module_alignment=”center” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”3_5,1_5,1_5″ _builder_version=”4.24.0″ _module_preset=”default” width=”70%” max_width=”100%” custom_padding=”||27px|||” global_colors_info=”{}”][et_pb_column type=”3_5″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#FFFFFF” header_4_text_color=”#FFFFFF” width=”100%” max_width=”100%” custom_padding=”5px|10px|5px|10px|false|false” border_width_all=”1px” border_color_all=”#FFFFFF” global_colors_info=”{}”]<\/p>\n LES \u00c9V\u00c9NEMENTS IND\u00c9SIRABLES DOIVENT \u00caTRE SIGNAL\u00c9S ICI <\/a><\/span><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_font=”||||||||” text_text_color=”#FFFFFF” text_font_size=”16px” global_colors_info=”{}”]<\/p>\n Presse et m\u00e9dias<\/a><\/span> [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_text_color=”#FFFFFF” text_font_size=”16px” text_text_color_tablet=”” text_text_color_phone=”” text_text_color_last_edited=”on|desktop” global_colors_info=”{}” text_text_color__hover_enabled=”on|desktop” text_text_color__hover=”#FFFFFF”]Responsabilit\u00e9s<\/a><\/span>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” width=”70%” max_width=”100%” custom_padding=”||27px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_text_color=”#FFFFFF” header_text_color=”#FFFFFF” header_4_text_color=”#FFFFFF” header_6_text_color=”#FFFFFF” width=”100%” max_width=”100%” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.2″ _module_preset=”default” width=”70%” max_width=”100%” custom_margin=”-20px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.2″ _module_preset=”default” text_text_color=”#FFFFFF” width=”100%” max_width=”100%” global_colors_info=”{}”]<\/p>\n <\/span><\/p>\n \u00a9 2024 Kyowa Kirin Pharma. Tous droits r\u00e9s\u00e9rv\u00e9s. Ce site web est destin\u00e9 aux r\u00e9sidents fran\u00e7ais [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Section” _builder_version=”4.27.2″ _module_preset=”default” background_color=”#5d6164″ custom_margin=”-100px||||false|false” custom_padding=”||0px||false|false” top_divider_color=”#FFFFFF” top_divider_height=”71px” top_divider_repeat=”1x” top_divider_flip=”vertical” top_divider_style_tablet=”” top_divider_style_phone=”none” top_divider_style_last_edited=”on|desktop” saved_tabs=”all” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” width=”70%” max_width=”100%” custom_padding=”||27px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#FFFFFF” header_text_color=”#FFFFFF” header_4_text_color=”#FFFFFF” header_6_text_color=”#FFFFFF” width=”100%” max_width=”100%” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n Juillet 2025 KKI\/FR\/KKI\/0126<\/span><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Acting as a connector and community builder, we work with our stakeholders to identify and connect with patients earlier on their journey, helping them to access the care, treatment and support they need.<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":888,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-905","page","type-page","status-publish","hentry"],"yoast_head":"\n![\"\"](\"https:\/\/kyowakirininternational.com\/fr-fr\/wp-content\/uploads\/sites\/13\/2024\/01\/Link-to-external-1.png\")
<\/p>\nSoutien aux patients<\/h1>\n
Le programme aXess<\/h2>\n
La plateforme CARENITY<\/h2>\n
Kyowa<\/span> Kirin lance la d\u00e9claration de consensus mondial Time to <\/span>Act<\/span> sur le lymphome cutan\u00e9 \u00e0 cellules\u202fT (CTCL)<\/span><\/span><\/h1>\n
![\"\"](\"https:\/\/kyowakirininternational.com\/fr-fr\/wp-content\/uploads\/sites\/13\/2024\/05\/CTCL-Global-Care-Collaborative-Logo_Blue-300x164.png\"){kind=logo}
<\/p>\nImportance <\/span>de la prise en charge multidisciplinaire (MDT) dans les maladies rares<\/span><\/span>\u00a0<\/span><\/h1>\n
Carri\u00e8res<\/a><\/span><\/p>\n\u00c0 PROPOS DE NOUS<\/a>\u00a0 |\u00a0 NOUS CONTACTER<\/a>\u00a0 |\u00a0 POLITIQUE DE CONFIDENTIALIT\u00c9 DES DONN\u00c9ES<\/a>\u00a0 |<\/h4>\n
CONDITIONS G\u00c9N\u00c9RALES D\u2019UTILISATION<\/a><\/h4>\n
Kyowa Kirin Pharma
Tour Aurore La D\u00e9fense,
18-19 Place des Reflets,
92400, Courbevoie
Tel : 01.55.39.14.30<\/p>\n