Supporting Patients
Acting as a connector and community builder, we work with our stakeholders to identify and connect with patients earlier on their journey, helping them to access the care, treatment and support they need.
Supporting Multidisciplinary Care
Multidisciplinary teams (MDTs) are vital in supporting people living with rare diseases through their diagnosis and care journey. They facilitate better access and more effective delivery of specialist care. For rare diseases like XLH and CTCL, this is vital for those managing such complex diseases.
Kyowa Kirin’s goal is to identify best practices for MDTs in XLH and CTCL across Europe. This is so we can partner with the XLH and CTCL communities to support best-practice sharing, communicate what ‘good’ care looks like and better understand care delivery and the impact it can have on people’s lives.
Watch the videos below to learn more.
Our Patient Interaction Policy
We are committed to ethical and meaningful interactions with patients, care partners, patient advocates and patient advocacy groups. This means ensuring all collaborations between KKI and the patient community reflect the key principles of respect, integrity, independence and transparency.
For more information about how KKI interacts with the patient community, read our Patient Interaction Policy here.
Access to Medicines
There may be occasions when it may be appropriate for a Kyowa Kirin unlicenced medicine to be provided for a patient using Access to Medicines mechanisms following a request from the responsible Healthcare Professional. This does not include providing medicines as part of a clinical study, humanitarian product donations, other commercial access programs for licensed medicines or commercial supply of free products.
If you are a Healthcare Professional who would like to contact Kyowa Kirin regarding our Access to Medicines mechanisms, please contact us here.
Patients cannot make a request for Access to Medicines themselves and will need to contact their Healthcare Professional.
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Kyowa Kirin International plc is a company registered in Scotland (company number SC198780) with registered address at Galabank Business Park, Galashiels TD1 1QH, United Kingdom.
KKI/INT/KKI/0913 September 2024