Supporting Patients
Acting as a connector and community builder, we work with our stakeholders to identify and connect with patients earlier on their journey, helping them to access the care, treatment and support they need.
View and download our interactive maps to explore the lived experiences of people living with X-linked hypophosphataemia (XLH).
Developed through patient interviews, surveys and extensive research, these patient journey maps capture how the emotions and unmet needs evolve across different life stages — from childhood, through adolescence to adulthood. Follow the pathway to uncover key stages in the journey: securing a diagnosis, navigating adolescence and transitioning to adult care. Track the milestones for a window into what living with XLH really means.
View and download our interactive map to explore the lived experiences of people living with Cutaneous T-cell Lymphoma (CTCL).
Living with cutaneous T-cell lymphoma (CTCL) — including mycosis fungoides and Sézary syndrome — means more than just coping with physical symptoms. The emotional toll can be just as heavy and changes as the disease progresses. Using insights from patient interviews, surveys and extensive research, this map charts the real, evolving experiences of people living with CTCL — from diagnosis through treatment and beyond. Discover the emotional milestones and the unmet needs that still shape life with CTCL today. View and download the patient journey map below.
Our Patient Interaction Policy
We are committed to ethical and meaningful interactions with patients, care partners, patient advocates and patient advocacy groups. This means ensuring all collaborations between KKI and the patient community reflect the key principles of respect, integrity, independence and transparency.
For more information about how KKI interacts with the patient community, read our Patient Interaction Policy here.
Access to Medicines
There may be occasions when it may be appropriate for a Kyowa Kirin unlicenced medicine to be provided for a patient using Access to Medicines mechanisms following a request from the responsible Healthcare Professional. This does not include providing medicines as part of a clinical study, humanitarian product donations, other commercial access programs for licensed medicines or commercial supply of free products.
If you are a Healthcare Professional who would like to contact Kyowa Kirin regarding our Access to Medicines mechanisms, please contact us here.
Patients cannot make a request for Access to Medicines themselves and will need to contact their Healthcare Professional.
Copyright © Kyowa Kirin International plc. All rights reserved. This website is developed and funded by Kyowa Kirin International plc.
Kyowa Kirin International plc is a company registered in Scotland (company number SC198780) with registered address at Galabank Business Park, Galashiels TD1 1QH, United Kingdom.
KKI/INT/KKI/0923 July 2025.